Ernesto Schwartz Marín. Mphil in Genomics in Society ESRC- Centre for Genomics in Society Exeter University, United Kingdom Byrne House St. Germans Road Exeter, UK EX4 4PJ; email@example.com www.genomicsnetwork.ac.uk/egenis
Abstract-The creation of The National Institute of Genomic Medicine (INMEGEN) has been accompanied by the conception of genomic sovereignty in Mexico; this relation is key to understanding the socio-legal design of population genomics and the political framing of this new technology in the public sphere. In the last four years the coupling of an incipient bioethical framework and the production of the Mexican Hap Map has converged in a modification to the General Law of Health, in order to protect the so called “genomic sovereignty”. Even though the discursive links between national security, the uniqueness of Mexican Mestizo/ Indigenous population and the promise to improve health care in the country, became the unquestionable platform for the new socio-technical project; the very conception of genomic sovereignty is by no means unproblematic.
Keywords: Genomic Sovereignty, Mexico, INMEGEN, Bioethics, Population Genomics.
Protecting Genomic Sovereignty: Insights from ethnography and political philosophy
Based on the premise that a nuanced understanding of the genomic structure of populations could bring exponential health benefits to Mexicans, the National Institute of Genomic Medicine (INMEGEN) was created in July 2004. Mexican congress mandated this new organization with the official duties to “promote, regulate, foster and practice the research and medical applications derived from the knowledge of the human genome (Gaceta Parlamentaria, Article V-bis, 24 of April 2004).” It was not a minor political deed that the clearance for one of such projects became possible in a developing country, at a national scale and with an unusual budget of 120 million dollars (plus private donations). According... [continua]
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