Willie Mae Goodman's 4-year-old daughter was in Building 14. "She wasn't clean," Mrs. Goodman recalled this week. "You could smell her. Her little toes would be so chafed I had to pull them apart. I had to cut her hair short it was so matted." A Permanent Requirement
The institution came to symbolize everything that was wrong with the care of the mentally retarded, prompting a lawsuit and extensive reform of the way the retarded were treated in the state.
This social transformation to care in small group homes reached a concluding milestone yesterday as Federal Judge John R. Bartels ended 18 years of Federal court supervision over former Willowbrook residents. Virtually all the surviving residents, most of them severely or profoundly retarded, now live in group homes, including Mrs. Goodman's daughter, Margaret.
Judge Bartels, the state and lawyers for the retarded also signed a document that permanently requires the state to keep the former Willowbrook residents in community homes.
The judge is 95 years old now and peers closely at legal papers to read them. The lawyers are balding; the parents have aged. The former residents of Willowbrook, once neglected and brutalized, now cook and shop and marry the people they love. They gathered yesterday for one last, emotional time in Federal District Court in Brooklyn to celebrate what they had wrought.
While so many other social problems -- homelessness, poverty, mental illness -- have resisted solution, New York's reforms in the care of the mentally retarded have provided a life of dignity for thousands of people once written off as incurable "mental defectives" and have provided a model for other states around the country,... [continua]
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