Cerebral palsy

Section 8: Conclusion and recommendations

● The review gives some indications of the experience of living with cerebral palsy as adults.
● There is little evidence to date on the overallimpact of ageing on adults with cerebral palsy.
● There is an urgent need for large longitudinal cohort studies to monitor the primary and secondary effects of ageing with
cerebral palsy.Cerebral palsy and ageing:
a systematic review

Future research and points of consideration should include:
● The functional deterioration over time engendered by strain and over/under use ofmuscles and/or joints.
● The ways in which the type of cp impacts on functional ability.
● The creation of collaborative research groups and increased measurement of processes of care andoutcomes (Armstrong
2003, Parkes et al 2001a).
● Longitudinal research on the effects of ageing and the changing pattern of disability with specific sub-group populations. In particularconsideration of quality of life, and the emotional and psychological impact of living with cp.

References

● Armstrong R (2003) Cerebral palsy: why doesn’t our knowledge advance more quickly?Developmental Medicine and Child Neurology 45: 579

● Badawi N, Watson L, Petterson B, Blair E, Slee J, Haan E, Stanley F (1998) What constitutes cerebral palsy? Developmental Medicine and ChildNeurology 40: 520-527

● Parkes J, Donnelly M, Hill N (2001a) Focusing on Cerebral Palsy: Reviewing and communicating needs for services London: Scope

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Dr Diane Cox, ClareWeze, Chris Lewis

Executive Summary

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Executive Summar y

This systematic review was commissioned by...