Como Se Vive Con Glaucoma?

JAN
ORIGINAL RESEARCH

JOURNAL OF ADVANCED NURSING

Patients’ experience of living with glaucoma: a phenomenological study
Pei-Xia Wu, Wen-Yi Guo, Hai-Ou Xia, Hui-Juan Lu & Shu-Xin Xi
Acceptedfor publication 29 October 2010

Correspondence to S.-X. Xi: e-mail: shuxinxi71@126.com Pei-Xia Wu BSN RN Master Student School of Nursing, Fudan University, Shanghai, China Wen-Yi Guo MD Professorof Ophthalmology Eye & ENT Hospital, Fudan University, Shanghai, China Hai-Ou Xia PhD RN Chair and Professor School of Nursing, Fudan University, Shanghai, China Hui-Juan Lu MSN RN AssociateProfessor School of Nursing, Fudan University, Shanghai, China Shu-Xin Xi MSN RN Vice Director Department of Nursing, Eye & ENT Hospital, Fudan University, Shanghai, China

W U P . - X . , G U O W . - Y . ,X I A H . - O . , L U H . - J . & X I S . - X . ( 2 0 1 1 ) Patients’ experience of living with glaucoma: a phenomenological study. Journal of Advanced Nursing 67(4), 800–810. doi:10.1111/j.1365-2648.2010.05541.x

Abstract
Aim. To explore the life experiences of those living with glaucoma and describe their strategies to deal with the consequences of this disorder. Background. Glaucoma, thesecond most common cause of worldwide blindness, often imposes limitations on the daily functions of its victims, thus resulting in a decline in their quality of life and high costs in healthcare.Methods. A hermeneutical phenomenological research approach was adopted. Fourteen people with glaucoma were selected for in-depth interviews, and another ten were interviewed in two focus groups.Participants were recruited from a specialized eye hospital in Shanghai. The data were collected from July to September 2009. An interpretive analysis of the data was performed. Findings. The core theme wasidentified while interpreting the data on the patients’ life experiences as ‘learning to living with glaucoma’ by one of our participants. The meaning of this is demonstrated in four interwoven...