Parents and children with down syndrome

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  • Publicado : 2 de junio de 2011
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In the Know. Parents and Children with Down Syndrome

Many of us are familiar Down syndrome because is a highly common disease that in some way we are able to identify by observing an individual. As we grow older we are taught by society on how to identify those traits of affected children and for others because they encounter them in their life. Whatever the reason it may be, the generalpopulation does not need to dig deeper into the subject until it hits home and knowledge is important to deal with the issue. This research paper is focused on the comprehension of Down syndrome but more over on how parents can successfully deal with the special needs their affected children. This paper will guide you through a road map on what to look for as a parent if encountered with this lifesituation and it includes information about Down syndrome, myths, parents’ experiences and some aspects of approach important for the kid’s development.
The first thing a parent face when they receive the notice of such condition about their children. The question they raise is what is Down syndrome? How can this happen to me or my child? Can it be cured? And many other questions that parents need toaddress in the beginning of the process with this disease. The author Phillip Margulies, on her book Down Syndrome, describes important to look into the scientific explanation of what leads to Down syndrome. The author deems important to explain the reader what causes this genetic disease and how history is important to acknowledge to get a good basic understanding and follow an approach thatwill not perpetuate what ostracizes the children affected with Down syndrome.
Besides knowing how Dow syndrome occurs and what history has to tell us, is important to know many of the preconceived ideas about the syndrome to educate ourselves. The author Salvatore Tocci, on his book Down Syndrome, says that without having the facts people’s beliefs rely on hearsay more than anything else. On hisbook he discusses aspects of life in an affected child and even a section focused specifically to Myths and Truths about Down syndrome. This section alone can educate with the essentials many children and adults need to shape for the better issues with socialization that oftentimes banish the children and parents directly affected.
Parents of Down syndrome kids face two important issues: one is howthey can focus on their person in terms of acceptance? and the other is how to help my child through his condition? The author Jennifer Groneberg, on her book Road Map to Holland, she describes her story on how she dealt with her son’s first two years with Down syndrome. Her story is effective because Groneberg illustrates the story since she was pregnant, her grief and false guilt, understandingof the disease, doctor’s visits, baby concerns, and many other things the author depicts from her motherly point of view. On her book she advise parents that the pain of what was supposed to be the perfect children is a fact and that will never go away, but spending your life mourning about what was not, will stop you from enjoying the other beautiful things in life for you and your children.Another resource that helps parents accept the fact and support their children is the book Babies with Down Syndrome. A New Parents’ Guide where the author focuses on how parents can assist their children on a daily basis but it includes on every chapter the statements of many parents who are in the same situation and who have approached the issues in different ways as well as their emotionalcondition.
Among many things parents need to address with their children with Down syndrome are their motor skills and their communication skills for an appropriate development. The author Patricia Winders, on her book Gross Motor Skills in Children with Down Syndrome, describes ways on how parents can assist their children as they grow with their body movements but in an interesting approach....
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